SPIO stands for "Stabilizing Pressure Input Orthosis" and is used to provide all over pressure for children with sensory issues. It works for both hyper- and low- sensitivity and is designed to give that steady pressure/input all day so the child feels more organized and ready to tackle other things. The pressure also helps kids like Carver have a greater sense of body awareness. It is in two pieces, a shirt and pants. They overlap a lot and stay in place great.
It is generally recommended to give a 2 week trial, every day all day under clothes. Here the pictures are without so you get an idea of the super tight "super suit" concept. I ordered one back in July and have 90 days to try it out and send it back. So we're taking advantage of the cooler weather to give it a shot. Honestly, I can't tell a difference. Not this week anyway. I haven't given up yet, though. I'll keep trying it.
The black suit is the official SPIO suit. It costs $200 out of pocket or $380 to insurance. Ouch!! It has to work pretty well or it's not worth it to me. Hence, the red suit. My fabulous aunt Joann is a whiz of a seamstress and she duplicated our black one in red. The lycra is a little thicker and tighter, but it went on okay. And for less than $10, it's well worth a try! I have to say that black isn't as noticeable, but the red is pretty fun. I wonder about a white shirt for church days... :) hard to imagine those red sleeves peeking out of his short sleeve white button-up, huh?
The pictures aren't great, but let's face it - Carver isn't photogenic. Hardly ever do I get a decent shot of the kid. So here's the best we can do!
5 comments:
that is really fascinating! i myself think i would feel quite SUPER wearing something like that! (it reminds me of the cool INCREDIBLES!) and $10 sounds a lot better than the alternative! YIKES! he's a cutie!
You are so smart Rachael! I think this all the time, but the red suit is the best solution! I love how Incredible it looks! Maybe you can sew a patch or two on it! I guess it will be under clothes, but...
Rachael- I've been moving and without internet, so I just caught up... you are amazing! Thanks for your wonderful example of patience and unconditional love- your children are very lucky.
Wow, Rachael, I just found your blog and I thought I had had every problem in the book with my boys but it looks like you have more of a challenge than I realized! I'm so glad that you're finding solutions and I'm even more amazed at all that you do. Your kids are definitely lucky to have you!
they oughta call it a "super suit"!! taylor would really be into those, they look just like the super hero costumes he wears! Thank heaven you don't live in SC! We're still mid 90's and up plus humidity. i can't imagine ever being cold (or even cool) again. Being pregnant doesn't help.
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